Privacy Policy

Effective Date: 22 July 2026

PCOS Relief ("we", "our", or "us") is committed to protecting your privacy and handling your personal information responsibly. This Privacy Policy explains how we collect, use, store and protect your information when you visit www.pcosrelief.org, contact us, participate in surveys, submit forms, or engage with our awareness campaigns.

Who We Are

PCOS Relief is a registered charity dedicated to raising awareness of Polycystic Ovary Syndrome (PCOS), supporting individuals affected by the condition, promoting education, and encouraging research and advocacy.

Website:
https://www.pcosrelief.org

Email:
info@pcosrelief.org

Information We Collect

Depending on how you interact with us, we may collect:

Personal Information

  • Name
  • Email address
  • Telephone number
  • Country or location
  • Information you voluntarily provide through forms or surveys

Health-Related Information

Where you choose to provide it, we may collect information relating to:

  • PCOS diagnosis
  • Fertility treatments
  • Medical experiences
  • Survey responses
  • Personal stories

Providing this information is entirely voluntary.

How We Use Your Information

We use your information to:

  • Respond to enquiries
  • Contact you regarding research or media opportunities
  • Manage event registrations
  • Deliver newsletters (where you have subscribed)
  • Improve our services and website
  • Conduct surveys and research
  • Raise awareness of PCOS
  • Administer charitable activities

We only use your information for the purposes for which it was collected.

Media Opportunities

If you register your interest in participating in a media interview or awareness campaign, we may use your information to:

  • Assess your suitability
  • Contact you regarding the opportunity
  • Arrange interviews
  • Discuss your preferences regarding anonymity

Your information will never be shared with journalists, media organisations or third parties without your explicit consent.

Anonymous Participation

Where we offer anonymous interviews or case studies, we will respect your choice to remain anonymous.

Your identity will not be disclosed without your permission.

Meta Instant Forms

If you submit information through a Facebook or Instagram Instant Form, we collect your details solely to contact you regarding the campaign or opportunity described in the advertisement.

Information submitted through Meta platforms is also subject to Meta's Privacy Policy.

Cookies

Our website may use cookies to:

  • Improve website performance
  • Remember user preferences
  • Understand website usage
  • Measure website traffic

You can control or disable cookies through your browser settings.

Analytics

We may use services such as:

  • Google Analytics
  • Meta Pixel

These help us understand how visitors use our website and improve our content.

These services may collect anonymous usage data.

Email Communications

If you subscribe to our newsletter, we may send:

  • Charity news
  • Awareness campaigns
  • Research opportunities
  • Events
  • Educational content

You can unsubscribe at any time using the link provided in every email.

Sharing Your Information

We do not sell your personal information.

We may share information only with:

  • Service providers who help operate our website
  • Event management platforms
  • Email service providers
  • Research partners (only where you have consented)
  • Media organisations (only where you have explicitly agreed)

Data Security

We use appropriate technical and organisational measures to protect your personal information against:

  • Unauthorised access
  • Loss
  • Misuse
  • Alteration
  • Disclosure

Although we take reasonable steps to safeguard your information, no internet transmission is completely secure.

How Long We Keep Information

We keep your information only for as long as necessary to:

  • Provide our services
  • Meet legal obligations
  • Complete research or awareness activities
  • Resolve disputes

When information is no longer required, it is securely deleted.

Your Rights

Depending on your location, you may have the right to:

  • Access your personal information
  • Correct inaccurate information
  • Request deletion of your data
  • Withdraw consent
  • Restrict processing
  • Object to processing
  • Request a copy of your information

To exercise these rights, please contact us using the details below.

Third-Party Links

Our website may contain links to external websites.

We are not responsible for the privacy practices of third-party websites.

Changes to This Policy

We may update this Privacy Policy from time to time.

Any changes will be published on this page together with the updated effective date.

Contact Us

If you have any questions about this Privacy Policy or how we process your information, please contact:

PCOS Relief

Website:
https://www.pcosrelief.org

Email:
info@pcosrelief.org

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🎤 MEDIA OPPORTUNITY

Have you taken Letrozole or another fertility medication?

PCOS Relief has been contacted by a media organisation looking to speak with women living with PCOS/PMOS about their experiences with Letrozole or similar fertility treatments.

Your story could help raise awareness of the fertility challenges faced by people living with PCOS/PMOS and improve public understanding.

✓ Interviews can be conducted anonymously if preferred.

If you're interested in taking part, complete our short interest form.